When he took disability leave at the end of 2013 we thought he’d never work again.
At that time, he was taking 6-8 hydromorphone painkillers a day, as well as a high dose of Methotrexate by injection weekly.
He had developed severe and disabling nausea that no one could diagnose.
Now, the pain and nausea are manageable and he is medication-free, except for a few Tylenol Arthritis a week.
That sounds dramatic, and it is, but there were many times during the past 28 months when his health didn’t seem to be improving at all. And times when it was definitely getting worse rather than better.
But all of his autoimmune symptoms have gradually improved, and he is now in better health than he has been in eight years.
Back to Work
We honestly weren’t sure how the back-to-work experiment would go.
When he initiated it, he was partially bluffing. Read More
Many people who improve their autoimmune symptoms want to share what they have learned, so others can benefit too.
Most people just start a blog.
Vivek Mandan is creating Autoimmune Citizen Science, a free site that will enable anyone with an autoimmune condition to track personalized data to support their healing process.
Vivek and his team are looking for testers for the beta launch of their site this Spring. I’ve already signed up. Anyone else who is interested in the potential of measurement as part of their recovery will want to scoot over to Autoimmune Citizen Science to sign up as a beta user, too.
Consider this post to be your personal invitation from Vivek!
This month, I interviewed Vivek, who is 24 and lives in Ohio, USA, to find out more about his experience with autoimmune disease and about his vision for how Autoimmune Citizen Science could change the way we research and treat complex chronic health conditions. Read More
There’s nothing like a serious chronic illness to help re-set priorities. And we’re clear: our priorities lie with supporting others in their efforts to heal.
Matthew and I are developing a new platform that will offer individualized support for people who are taking personal responsibility for their health.
We’ve been working on this platform since the summer and we’ll be launching it soon.
The new site will be based on the idea that when it comes to health and healing, we are all unique. It’s the variations in our health status, goals, environment and genetic expression that determine the individualized pattern of living that will best support our well-being.
Eventually, once all the phases are rolled out, the new site will support the process of figuring all that out.
This is the most restrictive protocol of the dozen, with only 4 vegetables included during the elimination phase. If you are simultaneously on the Autoimmune Protocol (AIP), you’ll be down to 3, as one of those (green beans) is not AIP-friendly.
Aglaée created this diet specifically for people suffering from gut dysbiosis and significant digestive issues and therefore it removes all the usual foods that can cause leaky gut and systemic inflammation, as well as carbohydrates that are difficult to digest. Read More